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National Coalition for Mental Health Recovery | NCMHR

National Coalition News (NCN)

July/August 2010 Newsletter

From the Director

First let me say “SAVE THE DATE!” The NCMHR Annual Meeting will be held on Thursday, Sept. 30th at the Residence Inn by Marriott, 11931 Harbor Blvd., Garden Grove, CA (next door to the Hyatt Regency where Alternatives 2010 is being held). A light dinner will be served at 5:30 p.m., followed by the business meeting from 6:30 to 8:30 p.m.

It has been a full and exciting summer for us at NCMHR. On July 14, we celebrated Bastille Day/International Mental Patients’ Human Rights Day by having a special ceremony at SAMHSA dedicated to the opening of the Consumer/Survivor History Exhibit at the SAMHSA headquarters in Rockville, MD. This was a very special day for many people who have been involved in this project from its beginning. Updates on the exhibit will be provided on our website and e-news. To watch a six-minute video of highlights from the opening ceremony, click here.

Also on July 13-14, I along with NCMHR Steering Committee members Daniel Fisher and Effie Smith, and numerous other consumer/survivors participated in a special meeting entitled “Past, Present, and Future: SAMHSA Efforts to Promote Consumer Inclusion.” At this meeting, 18 of 19 consumer/survivor leaders in attendance (speaking as individuals, not on behalf of the federal government) signed a statement calling for the “urgent necessity for more non-drug alternatives in mental health care." To read the statement, click here.

Attendees of the July 13-14 SAMHSA gathering
Attendees of the July 13-14 SAMHSA gathering (Photo Credit: Leah Harris)

July 26 marked the 20th Anniversary of the Americans with Disabilities Act; an awesome opportunity to reflect on how far we have come as a cross-disability movement, and to set our sights on greater accomplishments for the future. The National Coalition was present in Washington for many of the weeklong festivities. One of the highlights was a march to the Capitol on July 21, sponsored by the National Council on Independent Living (NCIL). [To read President Obama’s remarks on the anniversary of the ADA, click here]

Puppet of the late cross-disability leader, Justin Dart
Puppet of the late cross-disability leader, Justin Dart (Photo Credit: Leah Harris)

Finally, some good news from Senate Appropriations. Funding for key programs like the Consumers Technical Assistance Centers and the Statewide Consumer/Family Network Grants were not cut and would remain at their FY2010 levels, as with the Mental Health and Substance Abuse Block Grants. It is GOOD that there were no cuts to consumer-run programs...but that is not good enough for us. I will continue to advocate for more funding, particularly for statewide network grantees. Currently 30 states are funded, the NCMHR goal is every state + DC.

To that end, I need your help. To better educate Congress, I really need bullet points on how you have effectively used:

  1. Statewide network grantee money (for those who have these grants) and/or
  2. Funding for other consumer/survivor-run projects in your state

PLEASE state clearly when you are responding to #1 and when you are responding to #2. I want to be able to speak accurately about how #1 money is used versus OTHER (#2) c/s projects in your state.

If you were talking to an elected official, what would you tell them about how effective these projects are, and why should congress fund more consumer/survivor-run projects? Please email me with your bullet points and let me know if you have questions. Thank you so much.

In support,

Lauren Spiro

Lauren Spiro

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The Evolution of the Concept of Recovery - By Daniel Fisher

…We have a field and a society that have been highlighting the importance of recovery—and that have had little agreement about its meaning…In this new era of healthcare reform, however, we need a broader concept of recovery...(Published in the July 30, 2010 issue of the Recovery to Practice E-Newsletter) [To read the entire article, click here]

Improving Access to Home and Community-Based Services - Information Bulletin # 319 (8/2010) - By Steve Gold

Nearly five years ago, Congress amended Medicaid by adding Section 1915 (i), intending to increase community-based services instead of institutional Medicaid services by permitting greater flexibility than Waivers permit. Unfortunately, only a few states took advantage of this. In enacting the Affordable Care Act in 2010, Congress made a number of additional changes which are extremely important to the disability community. However, unless your State opts to take advantage of these changes, they will not happen. These amendments take away many excuses the States have used in the past. [To read the entire bulletin, click here]

The Icarus Project Summer Update

Please read these inspiring updates and support the amazing work the Icarus Project is doing to create community, promote healing and wholeness, and shift the way we view “madness.” [Click here to read the Summer Update]

Interview with Kareem Dale, Obama's top disability adviser on ADA's 20th anniversary

Kareem Dale is associate director of the White House Office of Public Engagement and a special assistant to President Obama on disability policy, the first such adviser. He is legally blind and uses a cane when he walks. [Click here to read the interview]

Encourage the US to Ratify the Convention on the Rights of Persons with Disabilities (CRPD) - Excerpts from a letter by the Honorable Tony Coelho, US-International Council on Disability on the 20th Anniversary of the ADA

Today, 87 countries have already ratified the CRPD. By joining in this community, we can share our great expertise and leadership in furtherance of the democratic values enshrined in the CRPD. The CRPD is good for people with disabilities, good for America, and good for the world. Let us take this opportunity to deliver our unified message to the U.S. Senate. Please sign on to a letter prepared by USICD to Senators Kerry and Lugar of the Senate Foreign Relations Committee to indicate your support for the CRPD. [Please click here to read and sign onto this important letter]

Recovery to Practice Initiative

The Recovery to Practice initiative includes two complementary components: 1) Creating a Recovery Resource Center for mental health professionals complete with Web-based and print materials, training, and technical assistance for professionals engaged in the transformation process; and 2) creating and disseminating recovery-oriented training materials for each of the major mental health professions. Through these two major components, the RTP initiative aims to foster a better understanding of recovery, recovery-oriented practices, and the roles of the various professions in promoting recovery. [To access the RTP Weekly Highlights and other RTP materials, click here]

MindFreedom’s Directory of Mental Health Alternatives celebrates its one-year anniversary

MindFreedom recently celebrated the one year anniversary of its Free Online Directory of practitioners who offer “Mental Health Alternatives.” Currently, the directory lists providers in 18 states and 3 countries. Their goal is to have providers listed for every state in the USA, as well as including more international providers. To recommend providers to the list or to learn more about this list, you can go to www.mindfreedom.org/directory.

Psychotropic Medications Linked to Serious Adverse Drug Reactions in Children

July 2, 2010 — Psychotropic medications are associated with adverse drug reactions (ADRs), many of which are serious, in children younger than 17 years, according to a new database study from Danish researchers. [To read the entire article, click here]

New Madness Radio Shows Online!
Hearing Voices Movement - Jacqui Dillon

What is it like to hear voices? How do people learn to live with their voices, and are voices sometimes positive and helpful? What is the connection between voices and trauma? Jacqui Dillon, voice hearer and director of the UK Hearing Voices Network, discusses how the movement of people who hear voices is creating self-help alternatives to traditional and often abusive mental health care. www.intervoiceonline.org, www.caslcampaign.com. [Click here to listen to the show]

Upcoming Events

The NCMHR Annual Meeting - Thursday, Sept. 30th, 5:30 – 8:30 p.m.

The Residence Inn by Marriott, 11931 Harbor Blvd., Garden Grove, CA (next door to the Hyatt Regency where Alternatives 2010 is being held). A light dinner will be served at 5:30 p.m., followed by the business meeting from 6:30 to 8:30 p.m.

21st Annual National Adult Protective Services Association (NAPSA) Conference “Healing the Culture of Abuse”

November 8-10th, 2010, Westin Gaslamp Quarter, San Diego, CA
To register, go to: www.regonline.com/2010_napsa_annual_conference

Webinar on Peer Support
September 21, 2010 from 3:00 p.m. – 4:30 p.m. EST

Presenters: Jean Campbell, Shery Mead and Steve Harrington
Check back soon at the ADS Center website for details.

The purpose of the NCN is to share information that is consistent with our mission and values and that is significant for our constituency. We are not endorsing any particular organization.